The doctors have left me in a much worse situation
Current status
Still struggling- Still struggling
- Somewhat resolved
- Mostly resolved
- Fully resolved
The story
I have been dealing with IBS-D (diarrhea, gas, and intestinal spasms) for 5 years. A doctor diagnosed me with fructose intolerance. After following a reset diet for a month, I recovered, but as time went on, I didn't feel as good as before. So, he had me take a SIBO test, and I tested positive for hydrogen at 90 ppm (in October 2024).
He then prescribed me two rounds of Xifaxan and a very strict diet based on a "non-allergic (non-IgE and non-IgG) cellular hypersensitivity, confirmed by a positive cell-mediated test (3GTLH)". On this diet, I had to avoid certain foods and their related cross-reactive foods for 6 months—I couldn't even have trace amounts reaching my intestines.
After such a strict diet, I became very anxious, and all the antibiotic rounds he prescribed only worsened my situation. So I got tested again, but this time I got a mixed SIBO result (in November 2025). What did he do this time? He prescribed me even more antibiotics: Xifaxan and Neomycin. Obviously, I felt even worse after taking them.
I couldn't trust this doctor anymore, so I switched to a different dietitian, who prescribed me:
1 month of CleanIntest NPro + Biocidin + lactoferrin;
1 month of Berberine (2 capsules of 800 mg per day) + Clean Gut by Be Levels (3 times per day, which contains Sea Buckthorn Oil 900 mg—25% Palmitoleic Acid, Black Cumin Oil 150 mg, and Oregano Essential Oil 100 mg—80% Carvacrol);
and 2 months of Oregano Oil A.D.P. (50 mg, 3 times per day) + Neem extract (500 mg, 3 times per day).
However, I've been yellow/green watery fluid for 3 days with no solid meals. I have never felt so bad, so it's clear that I need to find a new practitioner because he's not considering to change the plan very much
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Followed for a month after fructose intolerance diagnosis.
Prescribed for 1 month with CleanIntest NPro and lactoferrin.
Taken 3 times per day for 1 month; contains Sea Buckthorn Oil 900 mg, Black Cumin Oil 150 mg, and Oregano Essential Oil 100 mg.
Prescribed for 1 month with Biocidin and lactoferrin.
Prescribed for 1 month with CleanIntest NPro and Biocidin.
500 mg, 3 times per day for 2 months, with Oregano Oil A.D.P.
Ingredient in Clean Gut by Be Levels.
2 capsules of 800 mg per day for 1 month, with Clean Gut by Be Levels.
Ingredient in Clean Gut by Be Levels.
Prescribed with Xifaxan after mixed SIBO result.
Ingredient in Clean Gut by Be Levels.
Two rounds prescribed after positive hydrogen SIBO test; later prescribed again with Neomycin after mixed SIBO result.
Avoided certain foods and cross-reactive foods for 6 months, including trace amounts.
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This is one person's reported experience aggregated by GutPattern, not clinical advice, a treatment protocol, or a diagnosis. What helped one contributor can do nothing — or harm — for someone with a different underlying cause. Sudden, severe, bloody, feverish, or worsening symptoms belong with medical care. Always discuss care decisions with a qualified clinician.
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